Skip to main content


Showing posts from February, 2011

The Original Legend of Zelda Turns 25 Today

Good memories...

EM with No Power

This morning our power went out...

For most people losing power is an inconvenience, they can't get things done, charge cell phones or use the microwave.

For those with Erythromelagia (EM) it is so much worse. When an EM patient loses power in their residance they lose their fan and air conditioning. They lose those few things that actually help.
With no way to help bring down their flare, added to the frustration and stress of knowing that they won't have that help. It makes a bad situation even worse.

It is winter still, which is the one positive, because in summer this would be even worse.

Does anyone have any suggestions on ways to help the no power situation?

Cure EM (Erythromelalgia)

So as I mentioned in a previous post, my wife (Tracey) has Erythromelagia (EM for short). I am going to try and sum up this condition and how it has affected our lives in as short of a blurb as I can. Here it goes...

This condition began to show up around May of 2010 when my wife's feet would randomly swell, turn red, get hot to the touch and become extremely painful. She describes it as being lit on fire. It is actually considered one of the most painful conditions out there. It is also very rare, which is why we brought the diagnosis to our primary care doctor. And for us it was just one more problem on a long list of things that had happened to Tracey's health over the past few years.

At first the flares were fairly infrequent, and she mostly noticed them when it was pretty warm out or when she had been walking for a while. Over the past 10 months, EM has taken control of every part of our lives. Tracey now has to work from home, she leaves the house only to go to the docto…

Let Them Play

The NFL Players want to play...please let them!

Wolverine or 2 Bat Men?

This is a really cool optical illusion.

Source The Daily What via Reddit


As some of you know my wife suffers from a rare medical condition among many other medical issues. The condition is called Erythromelalgiaand is extremely painful. This will be the first of many posts on the condition and what we are doing to try and treat it and learn to live with it. The video above was shown on ESPN years before my wife started showing symptoms of this disorder. It is absolutely amazing how Kate Conkllin has learned to cope with this and live her life. Even having a baby. Trying to get there...