I know, it’s been a while since I’ve put out an update on Tracey’s erythromelalgia. Why? Frankly, we have been in a bit of a holding pattern after not having that much success. At a certain point, trying diet after diet, treatment after treatment, without much in the way of results can get very mentally and physically exhausting. In short, we’ve haven't done anything, except try and eat healthy and drink a lot of smoothies over the last few months.
The positive to report in this is that in the last few months to a year, there has not really been any progression in either direction: The condition isn’t getting worse or better. That second part we are obviously not happy about. The EM has us basically in the same position as it did a year ago. Tracey all but stays in bed, working from home and doing her writing thing. We continue to just try and control the condition.
That is our update. Sometimes you just need a break. We do hope to get some kind of treatment plan rolling again soon. We still want to beat this stupid disease.