EM with No Power
This morning our power went out...
For most people losing power is an inconvenience, they can't get things done, charge cell phones or use the microwave.
For those with Erythromelagia (EM) it is so much worse. When an EM patient loses power in their residance they lose their fan and air conditioning. They lose those few things that actually help.
With no way to help bring down their flare, added to the frustration and stress of knowing that they won't have that help. It makes a bad situation even worse.
It is winter still, which is the one positive, because in summer this would be even worse.
Does anyone have any suggestions on ways to help the no power situation?